小瓢虫传媒

Ch茅nard, Jos茅e ; Friedel, Marie ; Olivier-d鈥橝vignon, Marianne ; Dubois, Anne-Catherine. Soins palliatifs p茅diatriques: quelles implications pour les familles et le personnel accompagnant ?. In: Enfances Familles G茅n茅rations, Vol. 42, p. 16314 (2023).

Friedel, Marie ; Aujoulat, Isabelle ; Brichard, B茅n茅dicte ; Fonteyne, Christine ; Renard, Marleen ; Degryse, Jean-Marie. The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study. In: Children, Vol. 10, no.7, p. 1167 (2023). doi:10.3390/children10071167.

Friedel, Marie ; Brichard, B茅n茅dicte ; Boonen, Sabine ; Tonon, Corinne ; De Terwangne, Brigitte ; Bellis, Dominique ; Mevisse, Murielle ; Fonteyne, Christine ; Jaspard, Maud ; Schruse, Marie ; Harding, Richard ; Downing, Julia ; Namisango, Eve ; Degryse, Jean-Marie ; Aujoulat, Isabelle. Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study. In: Journal of Palliative Medicine, p. 8p. (2021). doi:10.1089/jpm.2019.0646.

Friedel, Marie ; Renard, Marleen ; Devlieger, Hugo ; Verellen, Gaston. Belgian End-Of-Life Care Study Did Not Include French-speaking Units. In: Acta Paediatrica, Vol. 109, no.3, p. 636 (2020). doi:10.1111/apa.15082.

Friedel, Marie ; Aujoulat, Isabelle. Quel acc猫s aux soins palliatifs pour les enfants porteurs d'une maladie chronique complexe en Belgique?. In: Revue multidisciplinaire d'oncologie et h茅matologie, Vol. 14, no.1, p. 3 (2020).

Friedel, Marie. Un dispositif p茅dagogique out of the box pour encourager la collaboration interdisciplinaire/interprofessionnelle?. In: Les Politiques Sociales, Vol. 1, no.1&2, p. 128 p. (2020).

Friedel, Marie ; Gilson, Aur茅lie ; Bouckenaere, Dominique ; Brichard, B茅n茅dicte ; Fonteyne, Christine ; Wojcik, Thomas ; De Clercq, Etienne ; Guillet, Alain ; Mahboub, Alaa ; Lahaye, Magali ; Aujoulat, Isabelle. Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgium. In: BMJ Paediatrics Open, Vol. 3, no.1, p. e000547 (2019). doi:10.1136/bmjpo-2019-000547.

Friedel, Marie ; Aujoulat, Isabelle ; Dubois, Anne-Catherine ; Degryse, Jean-Marie. Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review.. In: Pediatrics, Vol. 143, no. 1, p. 22p. (2019). doi:10.1542/peds.2018-2379.

Friedel, Marie. La qualit茅 de vie des enfants en contexte palliatif, comment la documenter? Peut-on la mesurer? . In: M茅decine Palliative, Vol. 18, no.4-5, p. 184-197 (2019). doi:10.1016/j.medpal.2019.03.004.

Friedel, Marie ; Brichard, B茅n茅dicte ; Fonteyne, Christine ; Renard, Marleen ; Misson, Jean-Paul ; Vandecruys, Els ; Tonon, Corinne ; Verfaillie, Fran莽oise ; Hendrijckx, Georgette ; Andersson, Nathalie ; Ruysseveldt, Ilse ; Moens, Katrien ; Degryse, Jean-Marie ; Aujoulat, Isabelle. Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014.. In: BMC Palliative Care, Vol. 17, no. 1, p. 77 [1-11] (2018). doi:10.1186/s12904-018-0324-2.

Susam, Volkan ; Friedel, Marie ; Basile, Patrizia ; Bonetti, Loris. Efficacy of the Buzzy System for pain relief during venipuncture in children: a randomized controlled trial. In: Acta Biomed for Health Professions, Vol. 89, no. S.6, p. 6-16 (2018). doi:10.23750/abm.v89i6-S.7378.

Friedel, Marie ; De Terwangne, Brigitte ; Brichard, B茅n茅dicte ; Ruysseveldt,Ilse ; Renard, Marleen. The Belgian euthanasia law and its impact on the practises of Belgian paediatric palliative care teams. In: International Journal of Palliative Nursing, Vol. 24, no.7, p. 333-337 (2018). doi:10.12968/ijpn.2018.24.7.333.

Friedel, Marie. Des soins palliatifs int茅gr茅s.. In: M茅decine Palliative, Vol. 16, no.3, p. 169-172 (2017). doi:10.1016/j.medpal.2017.01.004.

Friedel, Marie. D'un passage 脿 l'autre, analogies entre l'accouchement et la mort. In: Soins P茅diatrie - Pu茅riculture : la revue de tous les acteurs du soin 脿 l'enfant, Vol. 37, no.289, p. 37-41 (2016). doi:10.1016/j.spp.2016.01.010.

Friedel, Marie. L'art de faire dans de la dentelle. Des soins palliatifs en p茅rinatalogie.. In: M茅decine Palliative, Vol. 15, no.16, p. 307-308 (2016). doi:10.1016/j.medpal.2016.05.001.

Cl茅ment de Cl茅ty, St茅phan ; Friedel, Marie ; Verhagen, A A Eduard ; Lantos, John D ; Carter, Brian S. Please Do Whatever It Takes to End Our Daughter's Suffering!. In: Pediatrics, Vol. 137, no.1, p. e20153812 [1-8] (2015). doi:10.1542/peds.2015-3812.

Friedel, Marie. Does the Belgian law legalising euthanasia for minors really address the needs of life-limited children? {commentary}. In: International Journal of Palliative Nursing, Vol. 20, no.6, p. 265-268 (2014).

Friedel, Marie. Soins palliatifs en p茅diatrie, 茅thique et relation au patient. In: Soins P茅diatrie - Pu茅riculture, Vol. 35, no. 281, p. 42-46 (2014). doi:10.1016/j.spp.2014.09.008.

Friedel, Marie. Passerelles entre culture palliative et crise covid-19 . In: Buchter S, Odier C, Frick E (Dir.), Soins et spiritualit茅s en temps de pand茅mie. L鈥櫭﹑reuve de la Covid-19, Ed. Sauramps Medical, 2021. 9791030302837 .

Friedel, Marie ; Hunt,Jenny ; Talawadekar, Pradnya. Anticipatory grief and bereavement support (Chapter 16). In: Julia Downing, Children's Palliative Care: an International Case-Based Manual, Ed. Springer, Springer, 2020, p. 201-210. 978-3-030-27375-0. doi:10.1007/978-3-030-27375-0_16.

Friedel, Marie. La liaison p茅diatrique. Un mod猫le original de soins palliatifs p茅diatriques transmuraux.. In: Jacquemin D, De Broucker D., Manuel de soins palliatifs, Ed. Dunod, Dunod: Paris, 2020, p. 1231-1245. 2100712365.

Friedel, Marie ; De Terwangne, B. ; Kirsch, M. ; Cassart, V.. Na毛l e stato accompagnato . In: Gobbi P, Alagna RA, Campani D, Colombo A, Crotti E, Montani D, Passoni C, Rosa D, Teti O (Coord.), Storie di persone, voci di infermieri. Un approccio innovativo allo studio della bioetica e della deontologia., Ed. Mc Graw Hill, 2020. 9788838696367.

Friedel, Marie. La complexit茅 des processus d茅cisionnels partag茅s en soins palliatifs: l鈥檜tilit茅 de s鈥檃ppuyer sur des guides de bonnes pratiques.. Soins palliatifs: la vie en transition (Namur, 03/03/2020).

Friedel, Marie ; Gilson, Aur茅lie ; Bouckenaere, Dominique ; Brichard, B茅n茅dicte ; Fonteyne, Christine ; Wojcik, Thomas ; Mahboub, Alaa ; Lahaye, Magali ; Aujoulat, Isabelle. Making the invisible more visible: a retrospective study identifying children and adolescents with complex chronic conditions and their access to specialised palliative care teams.. 16th World Congress of the European Association of Palliative Care (EAPC) (Berlin, Germany, du 22/05/2019 au 24/05/2019). In: BMJ- Paediatrics Open, Vol. 3, no.1, p. e000547 (2019).

Friedel, Marie. Comment aborder les adolescents gravement maladies 脿 domicile? Des pistes pour oser la rencontre!. Annual Conference of the Association Ecole 脿 Domicile, Brussels, Belgium (Bruxelles, 17/05/2018).

Friedel, Marie ; Mendes, Joana. Creating a safe environment for children and parents : how the concept of holding applied to paediatric palliative care might collid with the Belgian child euthanasia procedure ?. 4th Maruzza Congress on Paediatric Palliative Care: A global gathering (Rome, Italy, du 25/10/2018 au 27/10/2018).

Van den Broek, Kris ; Schmitz, Olivier ; Friedel, Marie ; Aujoulat, Isabelle ; Wens, Johan. Defining appropriate ende-of-life care: a Belgian community study. 10th World Research Congress of the European Association of Palliative Care (Bern, Switzerland, du 24/05/2018 au 26/05/2018).

Friedel, Marie ; Schmitz,Olivier ; Van den Broek, Kris ; Wens, Johan ; Aujoulat, Isabelle. Definition of (in)appropriate care seen from the patient鈥檚 perspective. . 10th World Research Congress of the European Association of Palliative Care (Bern, Switzerland, du 24/05/2018 au 26/05/2018).

Friedel, Marie ; Degryse, Jean-Marie ; Dubois, Anne-Catherine ; Aujoulat, Isabelle. Do we evaluate the outcomes of our interventions in pediatric palliative care? A systematic review.. 3rd International Childrens Palliative Care Network (ICPCN) Conference: Innovation, Integration, Inspiration. (Durban,South Africa, du 29/05/2018 au 31/05/2018). In: Instruments to measure Outcomes in Pediatric Palliative Care: a systematic review., Vol. 143, no.1, p. e20182379 (2019).

Friedel, Marie ; Brichard, B茅n茅dicte ; Aujoulat, Isabelle. Evaluating what we intend to reach: How should we measure children's quality of life in a palliative context? Searching for valid indicators of quality palliative care for children and their families. 10th Biennial Joanna Briggs Institute Colloquium 2018 Successful implementation of EBP: Hard work or good luck? (Antwerp, Belgium, 04/05/2018). In: Journal of Palliative Medicine, (2018).

Friedel, Marie ; Brichard, B茅n茅dicte ; Degryse, Jean-Marie ; Aujoulat, Isabelle. How can we evaluate quality of life of children with life- limiting conditions? A pilot-study at one PPC center in Brussels.. 3rd ICPCN Children's Palliative Care Conference: Innovation Integration, Inspiration (Durban, South Africa, du 28/05/2018 au 31/05/2018). In: Journal of Palliative Medicine, (2018).

Friedel, Marie ; Jacqmin, Nadine. Le leadership infirmier dans l鈥檌mpl茅mentation des bonnes pratiques.. CONGRES ANNUEL acn/FNIB pour la journ茅e internationale des infirmiers et infirmi猫res: le leadership infirmier (CEME, Charleroi, Belgique, 20/09/2018).

Mendes,Joana ; Friedel, Marie. Non-religious arguments to discuss pediatric euthanasia : why should pediatric palliative care use them. 4th Maruzza Congress on Paediatric Palliative Care: A global gathering (Rome, Italy, du 25/10/2018 au 26/10/2018).

Van den Broek, Kris ; Schmitz, Olivier ; Friedel, Marie ; Aujoulat, Isabelle ; Wens, Johan. Opinions and attitudes about end of life care: A Belgian community study. 10th World Research Congress of the European Association of Palliative Care (Bern, Switzerland, du 24/05/2018 au 26/05/2018).

Friedel, Marie ; Aujoulat, Isabelle ; Brichard, B茅n茅dicte. Des soins de liaison pour accompagner l鈥檈nfant en phase palliative et sa famille : R茅sultats d鈥檜ne 茅tude r茅trospective aupr猫s des 5 茅quipes belges de liaison p茅diatrique. 22猫me colloque GERIMOC (Libramont, Belgium, 23/09/2017).

Dancot,Jacinthe ; Friedel, Marie ; Savignac, Paule. La prise de d茅cision 茅thique : Concepts et exemple d鈥檃pplication clinique. 14th European Conference in Advanced Practice Nursing (MICX, Mons, Belgium, 16/11/2017).

Friedel, Marie ; Brichard, B茅n茅dicte ; Fonteyne, Christine ; Misson, Jean-Paul ; Renard, Marleen ; Vandecruys, Els ; Degryse, Jean-Marie ; Aujoulat, Isabelle. Hidden Part of the Iceberg: Making Paediatric Palliative Care in Belgium visible.. 3rd International Maruzza Conference on Paediatric Palliative Care (Rome,Italy, du 16/11/2016 au 19/11/2016).

Friedel, Marie. Il tempo dell鈥檃ttesa. L鈥檌nfermiere di fronte alle scelte di fine vita. XXII Congresso nazionale delle Societa Italiana di Neonatologia (Napoli, Italy, 15/10/2016).

Friedel, Marie ; Brichard, B茅n茅dicte ; Fonteyne, Christine ; Misson, Jean-Paul ; Renard, Marleen ; Vandecruys, Els ; Degryse, Jean-Marie ; Aujoulat, Isabelle. Integrated Pediatric Palliative Care in Belgium: The Paediatric Liaison Model. InSupC-RN Symposium EAPC (European Association of Palliative Care) Research Network (Brussels, Belgium, 30/09/2016).

Friedel, Marie ; Brichard, B茅n茅dicte ; Fonteyne, Christine ; Misson, Jean-Paul ; Renard, Marleen ; Vandecruys, Els ; Aujoulat, Isabelle. The Belgian Liaison model of Paediatric Palliative Care: First findings of a retrospective study based on a national database (2010-2014). 2nd International Children's Palliative Care Network Conference (ICPCN) (Buenos Aires, Argentinia, du 18/05/2016 au 21/05/2016).

Friedel, Marie ; Cl茅ment de Cl茅ty, St茅phan ; Jacquemin, Dominique. Self-request euthanasia in minors: an act of compassion. Analyzing arguments during public debate in Belgium. 7th Cardiff Conference : Medicine and compassion. Tool for the task or dangerous distraction ? (with ICPCN) (Cardiff university, United Kingdom, du 08/07/2015 au 10/07/2015). In: International Journal of Palliative Nursing, Vol. 20, no.6, p. 121-124 (2015). doi:10.12968/ijpn.2014.20.6.265.

Friedel, Marie ; Tonon, Corinne ; D'Oultremont, Elisabeth ; Develter, Sonja. Comment les concepts de cr茅ativit茅 et de spiritualit茅 peuvent-ils 茅clairer des situations cliniques en soins palliatifs p茅diatriques?. 6猫me Congr猫s du R茅seau francophone de soins palliatifs p茅diatrique: Savoirs et incertitudes (St Malo, France, du 01/10/2014 au 03/10/2014).

Friedel, Marie. How does the Belgian law about child euthanasia impact a Belgian paediatric palliative care course ?. 2nd Maruzza Conference: Paediatric palliative care : a global gathering. (Roma, Italy, du 19/11/2014 au 21/11/2014).

Friedel, Marie. What does the assessment of a pediatric palliative course tells us? . 1st Conference of the International Children鈥檚 Palliative Care Network (ICPCN): From ideas to action! (Mumbai, India, du 09/02/2014 au 11/02/2014).

Friedel, Marie ; Gilson, Aur茅lie ; Aujoulat, Isabelle. Recensement d'un nombre d'enfants atteints d'une maladie chronique complexe en r茅gion de Bruxelles-Capitale (rapport final), 2018. 57p. p.

Vandenbroeck, Kris ; Schmitz, Olivier ; Aujoulat, Isabelle ; Mistiaen, Patrick ; Friedel, Marie ; Genet,Magali ; Ricour, C茅line ; Kohn, Laurence ; Wens, Johan. Appropriate care at the end of life. Report number 296 (), 2017. 211 p. p.